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A wildly successful viral video campaign swept the internet ten years ago: the Ice Bucket Challenge. Its noble goal was to raise awareness and funds for the terrible disease, amyotrophic lateral sclerosis (also called ALS or Lou Gehrig’s disease).
Seventeen million people participated, and they raised $115 million for the ALS Association.
How was that money spent?
In this episode, nurses David, Jodi, and Nicole discuss how one pharmaceutical company took charity money to develop a new ALS drug. The problem? The drug never showed efficacy, and patients were being charged $450 per day for a drug the FDA knew was a bust.
When insurance companies balked at paying for it, the company again resorted to using a charity to pressure them to change.
In a similar vein to dementia drugs, pharmaceutical companies prey on the despair that comes with a horrible diagnosis like ALS, all while our federal regulators fail to uphold their primary function of protecting the public from big pharma grifters.
Nurses Out Loud can be heard on weekdays at 10 am ET. Listen on iHeart Radio, our world-class media player, or our free apps on Apple, Android, or Alexa. All episodes of Nurses Out Loud can be found on podcast networks worldwide the day after airing on talk radio.
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